Hello Friends and Family!
Thank you for your interest in Casey's Batters and helping us fund a cure for Cystic Fibrosis. Casey turns 21 this spring, is enjoying his college experience, all the while spending hours each day to stay healthy and battle CF through numerous medications and therapies.
We are grateful that Casey has access to talented and dedicated doctors and effective therapies to help him maintain his health. We long for the day when he no longer needs such intense treatment in addition to his already hecitc daily regimin of pills, nebulizers and chest physical therapy. Within the past few years, some amazing CF drugs have been developed. Now over 90% of CF patients benefit from an oral medication that treats the disease so well that their symptoms are minimized and they do not require such an intense daily routine. They are planning for futures they never thought they would have.
Casey is not eligilble to take these miracle drugs. His CF is caused by what are termed rare or nonsense CF mutations. The Cystic Fibrosis Foundation is dedicated to finding a cure for all CF patients and is now focusing in on rare and nonsense mutations. Their motto is "until it's done". Research and clinical trials are currently underway not only to develop medications to treat CF symptoms for these patients but also for a true cure, an end to CF, for all patients. Both of these goals are within reach.
This science costs money and that is where we need your help. Please consider making a donation to the Cystic Fibrosis Foundatioin to help Casey and all of the others afflicted with this horrible disease.
Casey's Batters is walking in Great Strides this year, twice and in person! We will participate in the Bethesda walk on Wednesday, May 4 and on the National Mall on Saturday, June 4. Please consider joining our team and walk with us at either location. Most importantly, though, we ask you to doante to the Cystic Fibrosis Foundation as we are committed to raise as much money as possible to make CF stand for CURE FOUND!
Please click on the link at left to donate and sign up to join our team. If you would prefer to send a check, please make it out to Cystic Fibrosis Foundation and send to us at 5805 Searl Terrace, Bethesda, MD 20816.
With much hope and gratitude,
Jennifer & Dennis