Jonathan Brock

This last year, Emerson and Sawyer faced two hospitalizations, completed over 1500 nebulization treatments, did 400 hours of airway clearance therapy, and took over 8000 pills. But thanks to the generosity of our friends, family and the CF Foundation, we also had moments of hope. Both of our kids are now taking modulators and have access to the best and most effective medications for their mutations.

We continue our fight for our little warriors: To keep them healthy, happy, and offer them some normalcy in their childhood. We know there are 10-15% of people with CF who are still waiting for a treatment. We will fight for them the way those before us fought for us and we will not stop our efforts until a cure is found for everyone with this disease. We know that together, we can conquer this disease.

Thank you to everyone for your support of our family and the Cystic Fibrosis Foundation.  At times this disease can feel very isolating, and I can’t tell you what joy it brings to us to have your support. As parents of children with CF Liz and I are constantly on edge.  The slightest cough or sniffle creates worry that this might lead to something more.  Emerson and Sawyer will continue with their daily fight until a cure is found.  For Will, he at times feels forgotten or not special as we struggle to give everyone the care they need.  The day of the walk is one of our favorites as it is a visual and physical representation of the supporting community that helps us get through the good and bad times. 

Till the Fight is Done!