Since the drug Trikafta was approved in 2019, the number of lung transplants has gone down significantly in people with cystic fibrosis. Some have stopped going to the hospital repeatedly for IV antibiotics to fight recurring infections. Many report their quality of life has greatly improved. The Cystic Fibrosis Foundation provided significant support for the development of this drug, thanks to donor dollars. In fact, nearly every CF drug currently available was made possible through Foundation support.
But not everyone with CF can take this drug. For this reason, the Foundation is funding the development of genetic therapies, which could one day offer a transformative treatment for everyone with this disease. Please help me raise money for the Great Strides Walk on May 1 so the Foundation can continue its work to make genetic therapies a reality. We are driven by a dream that one day, not one person will lose a life, child, sibling, parent, or friend to cystic fibrosis, and we are determined to succeed. #Iwork4CFF
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.