The Miner Miracle Makers

Welcome to The Miner Miracle Makers! We are once again asking for your support of JP, Logan and the entire CF population by making a donation to our Great Strides campaign. The money raised from this and so many other amazing events will go towards finding a cure or improvements in treatments, like Trikafta, for the ENTIRE CF population.

Since starting Trikafta, the boys have experienced a remarkable improvement in their quality of life. Their lung function is considered “normal”, they have been able to stop most of their treatments with the exception of enzymes, JP’s persistent cough has vanished, and neither one has cultured for any of the bacteria that has plagued their lungs in ages. Knock on wood!

Your previous and continued support has had a real impact on the lives of our children and the CF community. You need look no further than the statistical impact of Trikafta, a medication brought to market through your support:
1. Cystic Fibrosis was a childhood disease and is now an adult one! 57% of patients on the national CF patient registry are over the age of 18! And this number grows every year…JP and Logan are two of them.
2. The number of CF related lung transplants as well as kidney and liver transplants are markedly decreased. 
3. The percentage of people with normal or near normal lung function at age 18 is over 90% since starting Trikafta! Including JP and Logan!!
4. CF patients on trikafta are increasingly able to have successful pregnancies and become parents!
5. The projected median life expectancy is increasing every year and what was once a life-ending disease is now becoming a chronic condition to be managed. This is absolutely incredible! When JP was diagnosed with CF the median life expectancy was in the mid-20s and it’s now 50+!

While we and so many families are experiencing such dramatic and life changing benefits from this medication, there are still 10% of CF patients who do not have this luxury. There isn’t a medication like Trikafta for their genetic mutation/combination. And, because Trikafta is still relatively new we don’t know how long all of these benefits will last or what the long term impact of the disease prior to Trikafta will be for JP and Logan. However, we are hopeful because research continues every day to find new and improved treatment options. Some of these options include enhanced modulators that will work on those with mutations not currently treatable by the current medications and genetic therapies that are just in the beginning stages.

This is why we continue to raise awareness for CF and are asking for your support. Please consider making a donation to our team. We would also love for you to share our request with your friends and family. We are so close to making CF stand for Cure Found.  Thank you from the bottom of our hearts for your incredible support in helping us get to where we are and to where we will go in the very near future.

Love JP, Logan, Jennifer & Steve