We will be participating virtually in our 16th Great Strides walk on May 15, 2021. Kate continues to demonstrate perseverance, strength, and grace. For most of this school year, she attended tenth grade virtually. Despite this, Kate has done well in school, maintained strong friendships, collected driving hours, and participated in cross country during the fall. We are so proud of her!
On Thanksgiving Day, 2018, Kate started taking the wonder drug Trikafta. During Kate's last clinic visit, her lung function was 95% and her feeding tube was removed since she has demonstrated the ability to gain weight without the high caloric formula administered through her feeding tube. This is incredible progress and we are so grateful! Trikafta has truly changed the course of Kate's disease. This drug was researched and developed directly through donations and fundraising efforts. Together we are making a difference!!
We are not done. Even though Kate's health has made dramatic improvements, our fundraising efforts and passion for finding a cure remain. The CFF (Cystic Fibrosis Foundation) can only continue to make progress with financial support from people like you. Making a donation to our team is easy and secure! Just click on the "Donate to Me" button to make a 100% tax free donation to our fundraising page and your contribution will be credited to our team. No donation is too small . Lastly, if you wish to send us a check, please make it payable to the Cystic Fibrosis Foundation (CFF).
As always, we are grateful for your continued love and support for Kate! Thank you for helping us add tomorrow's and making a difference!!
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.