Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that
clogs the lungs and leads to life-threatening lung infections; and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food. Cameron was diagnosed with Cystic Fibrosis in utero and knows no other way of life. Breathing treatments, chestphysiotherapy, digestive enzymes and hospital stays have been his "normal" since day one. Life with CF isn't easy, but Cameron takes it all in stride. Hospital stays and surgeries are inevitable.....Cameron has been hospitalized 8 times in his 13 short years of life.
As Cameron's parents, it is very hard for us to constantly push him everyday to do all his treatments, when what he really wants is to be doing anything else. We know however, that without these life saving treatments, his life would be very different. He wouldn't be the incredible athlete he is today. Along with his medications and therapy, excercise is very important. About 6 years ago Cameron tried out for a swim team and could barely swim a lap. Thanks to his coach who saw his potential she put him on the team. Since he began swimming his lung function has improved by more than 20%. He is consistently improving his times and getting stronger. Now he's a member of South Lyon's swim, cross counrty and Lacrosse teams. Several years ago this never could have happened. We would have been thankful if he would have survived to the age of 5 years old. Now the median age of survival is 39 years old. While that's wonderful, it's not long enough. It's 6 years younger than I am today. We want CF to stand for CURE FOUND!!
We are very humbled by any amount you are able to donate. Please know that .90 cents of every dollar is donated to research.
If you log into the CFF website you can read about all the exciting new treatment options in the pipeline thanks to the generous donations from all of you!
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.