There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe. We walk for them. But most of all, we walk for our son Miles with the hope of adding more tomorrows to his future. Join us and support our fundraising goal!
W h a t i s C y s t i c F i b r o s i s ? CF is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time. A thick, sticky mucus coats the lung and other organs, clogs airways and traps germs leading to infections, inflammation, respiratory failure, and other complications. In the pancreas, this buildup of mucus prevents the release of digestive enzymes that help the body absorb food and key nutrients, resulting in malnutrition and poor growth. There is currently no cure for CF.
S y m p t o m s o f C F
Very salty-tasting skin
Frequent lung infections including pneumonia or bronchitis
Wheezing or shortness of breath
Poor growth or weight gain in spite of a good appetite
Difficulty with bowl movements
M i l e s ' S t o r y
Miles was born June 13, 2018 in Grand Rapids, Michigan. On June 19, we received a phone call that no parent should ever have to get. It was Miles' pediatrican telling us his newborn screening came back positive for Cystic Fibrosis. We were immediately referred to Helen DeVos Children's Hospital in downtown Grand Rapids, and he has been receiving his treatment there ever since. His care team, consisting of pulmonoligists, physical therapists, social workers, dieticians, genetics counselors, among others, could not be more pleased with how Miles has been responding to treatment so far - he is gaining weight like crazy! We are so blessed to have such amazing support from our family, friends, the hospital, and the CF community. We are optimistic about his prognosis and look forward to experiencing all of his "miles"tones together as a family. We would be honored to have your support as Miles continues his fight with CF!
H o w c a n y o u h e l p ?
Donate to our fundraiser! Every cent goes to research to find a cure for CF. How cool will it be when Miles can one day look back and say, "Remember when I had CF?"
Click "Join this Team" at the top of the page and join us at Millenium Park on May 17 to walk with us! This event is the largest of its kind in Michigan and we would love to see as many of your beautiful faces as possible!
Say a prayer for our family as Miles continues to fight <3
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.