Alayna was diagnosed with Cystic Fibrosis during the 20th week of pregnancy. When we received the news we were devastated, lost, confused and unsure of what Alayna’s future would be. During the last 13 years of Alayna’s life, we have been through countless breathing treatments, antibiotic treatment, and hospital admissions. Every day is battle and every appointment is full of fear of the unknown. Alayna’s current medical treatment consists of over 10 pills that treat her lungs and stomach with 3 nebulized treatments daily and airway clearance. We don’t know what the future holds for Alayna and without a cure, we can only hope her life is long and beautiful. As Alayna’s mom all I hope and pray for is to see my daughter go to prom, graduate high school and even be there for her during her first broken heart. I hope I can be there for those things but with this awful disease I don’t know what the future holds for Alayna but I do know we won't stop fighting. All we have is our hope and prayers. Alayna lives her life to the absolute fullest. She's a football and competitive cheerleader. No matter how she is feeling she gives it all she has. We've had some major struggles these last few but we've fought and will continue to fight. In January 2018 Alayna received a feeding tube. Her weight has always been an issue and she was dropping too much due to her CF as well as some GI issues. We need you to help us fight this disease and one day find a cure for CF.
November 14th our lives changed completely. Alayna started Trikafta. This medication has given us hope for Alayna's future. Alayna is gaining weght her lung function has increased by 25 percent. Her constant productive cough is gone. She is able to continue being on the competive cheer team. She is able to run and keep up with the physical demand of the sport. Alayna is feeling great and each day gets better and better. All of this is becuase of you. Every dollar raised has helped us get where we are today. We are so grateful for each and everyone of you.
I hope we can count on you in our fight against Cystic Fibrosis!
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.