We're Eiramaniacs and we're here to stir up some awareness.
Cystic fibrosis is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time. In the lungs, mucus clogs the airways and traps germs, leading to infections, inflammation and respiratory failure. When a group of parents started the Cystic Fibrosis Foundation in 1955, there were no treatments for cystic fibrosis. Children rarely lived past kindergarten. Thanks to the dedication of this foundation, people with CF are reaching milestones previously unheard of. However, there is still no cure.
Eira (pronounced eye-rah) is a smart, spunky little girl who happens to have cystic fibrosis. As her caregivers, family and friends, we are dedicated to doing our part to support the continued development of more effective treatment.
If it were not for the Cystic Fibrosis Foundation, we would not have the hope we have for Eira's future. Therapies available today are the direct result of the Foundation's efforts. We believe there WILL be a cure for CF someday.
There are approximately 30,000 Americans living with cystic fibrosis, who struggle every day just to breathe. We walk for them. Will you join us? To become a member of our team, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
Please consider a donation in support of our team and help us add tomorrows for ALL living with cystic fibrosis.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.