I could start this letter with the statistics of Cystic Fibrosis , but like any other disease.... unless you are living in the household with the person that is affected, it is too hard to comprehend the complexity of their every day life. Instead I would like to share a story with you. In May 2013 , I was given the news that Kelly was chosen to receive a wish. When he came home from school. I ran up to greet him with the news. I said "guess What?!!! The center called today....and they want to grant YOU a wish. He immediately began to cry and buried his face in my chest.I "thought" he was overwhelmed with excitement and already KNEW what he wanted to wish, so I said "whats wrong? .... do you already know your wish? He looked me in the eyes and said " I wish I did not have CF anymore" this naturally sent me to tears. (after all it was the only wish he could have made that seriously could not happen at this time) After a couple years he did recieve his wish and we had a fabulous Disney Cruise. but the point is...... his true wish was NOT to go to disneyland or hawaii... His request was to remove this burden that controls his life,every single day. so my request to you is whether you have the ability to contribute $5.00 or $500.00 please consider the CF foundation. 100% of the procceeds goes to the research and development to cure this disease and your contribution is tax deductable. If you are not able to contribute financially, your support is always welcomed at fund-raisers and at the "Great Strides" walk which is conducted EVERY first saturday in May ( Snow, Rain or shine) He is so proud of his family and his special "kelly's Comrades" Please take a few minutes and register for Great Strides 2018. ( pre-registration just lets the Cystic Fibrosis committee know how many people to expect so they can make sure to have enough food and drinks for everyone) Thank -you to each person that took time to read this. We look forward to walking with you :)
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.