As most of you know 3 of our children were born with cystic fibrosis. CF is an inherited genetic disease that causes severe damage to the lungs, digestive system and other organs in the body. CF affects the cells that produce mucus, sweat and digestive enzymes. In people with CF, a defective gene causes the secretions to become sticky and thick which can make it difficult to breath, they also Experience chronic lung infections, digestive issues and overtime and death.
When our first son was born we had no idea what cystic fibrosis was, so when the nurse came in and informed us they were rushing him to the NICU we were in shock, we thought our beautiful, perfect little boy was dying and it was soul crushing. We had no idea about all the research that the cystic fibrosis foundation was doing to help find new medical treatments and drugs to extend the life of a person with CF.
The Cystic Fibrosis Foundation is simply amazing, when Landon was first born the average life expectancy was 25 but with all the research and donations from amazing people just like you, The life expectancy has gone up to mid-40’s. They are on the cusp of finding a cure for CF. I truly believe that we will see the day when CF stands for cure found.
We hope you will join our team and walk with us in honor of our own little Wrecking Crew.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.