Kate's Krew is walking in the Great Strides event on Saturday, May 19th, at 10 am. The walk will take place at the River Woods Park in Auburn Hills, MI. Please help us meet our fundraising goal of $60,000 by sponsoring or joining us at the walk.
In the last year, Kate's condition has been stable with no significant lung function or weight issues. Kate's current lung function is about 70%, which is average for someone with CF. We are hopeful that the new drugs being developed, will help improve Kate's lung function even more Luckily, Kate has not been hospitalized and has been able to enjoy her last year of middle school (8th grade), playing soccer and spending time with her friends.
We recently returned from the CFF Volunteer Leadership Conference in San Diego. It was a wonderful conference where volunteers from all over the country gather to learn, share fundraising ideas and receive medical updates from the Cystic Fibrosis Foundation Leadership. We learned one drugs in the pipeline called "triple combination" should be available in 2020. This drug is specific to Kate's genetic mutations and has proven through trials to significantly improve lung function and weight in CF patients. We cannot wait for the day Kate can start taking this drug!!!
The TRIPLE COMBINATION is how your donations to the Cystic Fibrosis Foundation are making a difference!! The CFF can only continue to make progress with financial support from people like you. Making a donation to our team is easy and secure! Just click on the "Donate to Me" button to make a 100% tax free donation to our fundraising page and your contribution will be credited to our team. No donation is too small and is tax deductible! Also, in an effort to surpass our fundraising goal, we would appreciate you sending our link to family or friends that you think would be interested in making a donation. Lastly, if you wish to send us a check, please make it payable to the Cystic Fibrosis Foundation (CFF).
To support our 2020 Toast to a Cure event, visit the site at https://passion.cff.org/toast-to-a-cure
As always, we are grateful for your continued love and support for Kate! Thank you for helping us add tomorrow's!!
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.