Kate's Krew is walking in the Great Strides event on Saturday, May 19th, at 10 am. The walk will take place at the River Woods Park in Auburn Hills, MI. Please help us meet our fundraising goal of $60,000 by sponsoring or joining us at the walk.
In the last year, Kate's condition has been stable with no significant lung function or weight issues. Kate's current lung function is about 70%, which is average for someone with CF. We are hopeful that the new drugs being developed, will help improve Kate's lung function even more Luckily, Kate has not been hospitalized and has been able to enjoy her last year of middle school (8th grade), playing soccer and spending time with her friends.
We recently returned from the CFF Volunteer Leadership Conference in San Diego. It was a wonderful conference where volunteers from all over the country gather to learn, share fundraising ideas and receive medical updates from the Cystic Fibrosis Foundation Leadership. We learned one drugs in the pipeline called "triple combination" should be available in 2020. This drug is specific to Kate's genetic mutations and has proven through trials to significantly improve lung function and weight in CF patients. We cannot wait for the day Kate can start taking this drug!!!
The TRIPLE COMBINATION is how your donations to the Cystic Fibrosis Foundation are making a difference!! The CFF can only continue to make progress with financial support from people like you. Making a donation to our team is easy and secure! Just click on the "Donate to Me" button to make a 100% tax free donation to our fundraising page and your contribution will be credited to our team. No donation is too small and is tax deductible! Also, in an effort to surpass our fundraising goal, we would appreciate you sending our link to family or friends that you think would be interested in making a donation. Lastly, if you wish to send us a check, please make it payable to the Cystic Fibrosis Foundation (CFF).
To support our 2020 Toast to a Cure event, visit the site at https://passion.cff.org/toast-to-a-cure
As always, we are grateful for your continued love and support for Kate! Thank you for helping us add tomorrow's!!
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.