Hearing your newborn daughter has a life threatening disease at just 12 days old will break any new parents hearts. Every emotion runs through your mind from wanting to know why and how could this happen to what does having Cystic Fibrosis mean. Raelynn went through the panel of tests and at just over a week old was diagnosed with Cystic Fibrosis. Her parents thought, how are we going to juggle all these doctor appointments, treatments, and medications? How will we know we are taking all precautions neccesary and providing her with the correct medications? But as any parent can understand, we knew we would do anything to make sure she had everything she needed. Raelynn's Grandmother gave us some wise advice: that over time, this would become our new normal.
From that day on her Dad and Mom have given her daily physical therapy treatments, broken thousands of her digestive enzymes capsules open at each meal, have worried at each cough and runny nose, and battle with insurance coverage. Now have the added worry of being in grade school full time and being around kids that can make her sick.
Raelynn is now 5 1/2 and it not letting CF stop her from anything!! She is lover of all animals and wants to be a vet when she grows up. A true girly girl, that loves to dress up in princess dresses and paint her nails like Mom. She is on the go constantly from being outside any chance she gets to gymnastics and playing soccer. Raelynn has a magic that can make your day and a smile that is contagious. She is the kind of girl whose light does not have an off switch!
Join the fight and walk alongside not only Raelynn but all of the strong fighters and you will see their magic and empowerment for yourself!!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I run for them and hope you will support me in my efforts.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support me by making a donation to my Great Strides fundraising campaign today!
To all of the supporters and the never ending prayers for the health of Raelynn a "thank you" does not seem to even cover it but know that it comes from the bottom of everyone's heart that suffers from Cystic Fibrosis. Without the contributions and support, research and growth would not be able to happen.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.