It is hard to believe that we heard the words "your daughter has Cystic Fibrosis" more than 16 years ago already. She was so little (15 pounds at 15 months old) and now she is full of life.
She will be graduating high school in just a few months and has been accepted to Calvin University, where she plans to major in nursing and someday become a pediatric nurse. She has also committed to the Acrobatic and Tumbling team at Calvin, where she will be able to continue her passion of competitive cheer.
Our journey began with questioning all her "symptoms" thinking that she might have some sort of food allergy. A constant cough, an enormous appetite, and more were all signs that something was not right. When Erin was born, there was not the newborn screen that is done on all babies born today. She missed this important test by only a few short months and is why she wasn't diagnosed until 15 months old.
Now with significant advances in the treatment of those with Cystic Fibrosis, Erin has access to precious treatments and medications that help her live a "normal" live.
As she heads off to college, we can't help but think how blessed we are. Only a few decades ago, children born with Cystic Fibrosis were not even expected to live to begin kindergarten. While she will embark on a new journey, with new challenges, we know the fight is not over yet. Cystic Fibrosis is a progressive disease, and without a cure, her health will continue to change. We are so thankful for the advancements being made, which is why we fight and will continue to until there is a cure for everyone with Cystic Fibrosis.
This year we are once again participating in the Great Strides Walk at Millennium Park on May 4, 2024. This is the Cystic Fibrosis Foundation's largest and most successful national fundraising event. We would love to have your support in helping Erin's Angels meet their fundraising goal this year. Your generous gift will be used efficiently and effectively, as nearly 90 cents of every dollar of revenue raised is available for investments in vital CF programs to support research, care and education.
Everyday precious lives are lost to this devastating disease, and amount you can donate is greatly appreciated and will add tomorrows to those suffering from Cystic Fibrosis.
Together we can make a difference in the lives of Erin and all those with CF. One day CF WILL stand for CURE FOUND!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.