Kamryn & Will were born with Cystic Fibrosis. CF is a genetic disease with a 25% chance of being inherited when both parents are carriers of the CF gene. People with CF have extra, sticky thick mucus in their bodies mainly affecting the lungs and digestive system. Kamryn & Will spend 2 hours daily doing breathing treatments to help keep their lungs clear as well as take multiple medications. Kamryn and Will both required major intestinal surgery at birth due to CF complications, which resulted in losing a portion of their intestine. Despite this, they continue to enjoy life with their big smiles and contagious laughs. Join our team to help us make CF stand for Cure Found!
With supporters like you by our side, the Cystic Fibrosis Foundation continues to lead the way in the fight against CF, fueling extraordinary medical and scientific progress. Because of this progress, Kamryn and Will have been able to start taking Trikafta, the new life-changing drug for people with CF. The life expectancy of someone born with CF has doubled in the last 30 years. Despite this progress, many people with CF do not benefit from existing therapies either because their disease is too advanced or because their specific genetic mutations will not respond. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day.
We walk in Great Strides for them.
Will you join us?
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.