Calling all friends and family, we are asking for a small donation of $65.00 in honor of Sixty Fiver Roses. We undertand everyone has diffrent resources and charities they support so we understand if you cannot support or only make a small donation. All donations add up to help us acheive our goal. During these difficult times, we are attempting to make it easier on our friends and family, so we plan to only ask you once a year for a small donation to support our annual Great Strides Walk to cure Cystic Fibrosis. Also, we are looking for volunteers to join our team and take a little time out of your day to reach out to your friends and family to reach more and more people. Our goal is $10,000 by May 15th. All we need is 500 people to donate a min of $20 bucks and we can reach our goal.
As most of you know, our daughter Alexa has Cystic Fibrosis and has battling it since birth. Throughout the years she has endured hundreds of days in the hospital, endless antibiotics, treatments, and procedures. Though your donation and support of the CF Foundation, Alexa and many others are taking a new medication called Trikafta. It is a triple combination drug that corrects the misfolding of the CFTR protein. Alexa has done extremely well on the medication, reducing the number of hospitalizations to ZERO!!! Your support of the CF Foundation has providing funding for advances in research and provided many with a better quality of life.
The Cystic Fibrosis Foundation is supported by donations from individuals and corporations and does not receive any federal funding. Across the country, the Foundation has 70 chapters and offices that work diligently to raise funds and support the search for a cure. Today, the average life expectancy for her and others around her age is 37 years old. Although that is improve considerably over the years, it’s still not good enough. We need to keep raising more and more money for better treatments and hopefully someday soon, a cure.
Join our team and help us get one step closer to a cure for cystic fibrosis – a rare, genetic, life-shortening disease that makes it difficult to breathe.
With supporters like you by our side, the Cystic Fibrosis Foundation continues to lead the way in the fight against CF, fueling extraordinary medical and scientific progress. The life expectancy of someone born with CF has doubled in the last 30 years. Despite this progress, many people with CF do not benefit from existing therapies either because their disease is too advanced or because their specific genetic mutations will not respond. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease.
We walk in Great Strides for them.
Will you join us?
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.