Hearing your newborn daughter has a life threatening disease at just 12 days old will break any new parents hearts. Every emotion runs through your mind from wanting to know why and how could this happen to what does having Cystic Fibrosis mean. Raelynn went through the panel of tests and at just over a week old was diagnosed with Cystic Fibrosis. Her parents thought, how are we going to juggle all these doctor appointments, treatments, and medications? How will we know we are taking all precautions neccesary and providing her with the correct medications? But as any parent can understand, we knew we would do anything to make sure she had everything she needed. Raelynn's Grandmother gave us some wise advice: that over time, this would become our new normal.
From that day on her Dad and Mom have given her daily physical therapy treatments, broken thousands of her digestive enzymes capsules open at each meal, have worried at each cough and runny nose, and battle with insurance coverage. Now have the added worry of being in grade school full time and being around kids that can make her sick.
Raelynn is now 7 1/2 and it not letting CF stop her from anything!! She is lover of all animals and wants to be a vet when she grows up. She is alway on the go and enjoys summer most of all. Spending the days playing in the pool and riding around on the quad. Last year she joined the cheer team and has a high kick like I haven't seen before. Raelynn has a magic that can make your day and a smile that is contagious. She is the kind of girl whose light does not have an off switch!
Join the fight and walk alongside not only Raelynn but all of the strong fighters and you will see their magic and empowerment for yourself!!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I run for them and hope you will support me in my efforts.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support me by making a donation to my Great Strides fundraising campaign today!
To all of the supporters and the never ending prayers for the health of Raelynn a "thank you" does not seem to even cover it but know that it comes from the bottom of everyone's heart that suffers from Cystic Fibrosis. Without the contributions and support, research and growth would not be able to happen.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.