Dear Family and Friends, This year the 2023 CF Great Strides walk is on May 7th at the Detroit Zoo. Unfortunately we will not be able to attend the walk this year, but you are welcome to attend in support of Ben's Buddies. We need your help to meet our fundraising goal. Your generous gift will be used to help support the Foundation's mission of finding a cure and improving the lives of those with CF. And, your gift is 100 percent tax deductible. You are helping Ben and all the other people, who graciously fight this disease daily. Ben spends a few hours everyday doing breathing treatments and taking many medications to help him live a healthy life. Ben just turned 15 on March 10th, 2023. He is a freshman at Royal Oak High School! Ben swam on the varsity swim team this year and had a great season. His hair went from long and curly to a buzz cut when he decided to join the ritual of shaving their hair for the swim team finals. Ben also earned his varsity letter as a freshman! So proud of his determination and hard work! All of that swimming is so good for those lungs! We know his progress and zest for life is due in part to your generous donations. The average life expectancy continues to rise because of your donations. The Cystic Fibrosis Foundation is constantly making great advances, to prolong the lives of those battling this disease. It gives us hope for Ben's future. Ben has been resilient throughout his life and has tackled all of the hurdles that have come with CF. He's truly an adaptable dude who takes life in stride. Ben started the miraculous new CF modulator, Trikafta, 3 years ago, on March 4th. Your donations have helped get this drug on the market to give those fighting CF a chance at living a healthy, long life. Cystic fibrosis is a devastating genetic disease that affects approximately 30,000 children and young adults in the United States. Research and care supported by the Cystic Fibrosis Foundation are making a huge difference in the lives of those with CF. Making a donation is easy and secure. Just click the link below that says, 'Click here to visit my personal page' to make a donation that will support my team. Any amount you can donate is greatly appreciated. Your support will help fuel lifesaving CF programs. Thank you for supporting Great Strides! Together, we can make a difference to the lives of those with CF.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.