Dear Family and Friends,
This year the 2022 CF Great Strides walk will be in person on May 1st at the Detroit Zoo. We need your help to meet our fundraising goal. Your generous gift will be used to help support the Foundation's mission of finding a cure and improving the lives of those with CF. And, your gift is 100 percent tax deductible. You are helping Ben and all the other people, who graciously fight this disease daily. Ben spends a few hours everyday doing breathing treatments and taking many medications to help him live a healthy life. Ben does all this in hopes that he will grow old and enjoy all that life has to offer. Ben will turn 14 on March 10th, 2022. I can't believe he will be in high school this next school year! Every year we celebrate his birthday I can't help but think back to his birth. It was a long five months in the hospital, as he fought for life in the NICU. We know his progress is due in part to your generous donations. The average life expectancy continues to rise because of your donations. The Cystic Fibrosis Foundation is constantly making great advances, to prolong the lives of those battling this disease. It gives us hope for Ben's future.
Ben is currently in 8th grade at Royal Oak Middle School. He has had to be resilient throughout his life and all of the hurdles that have come with CF. He's truly an adaptable child who takes life in stride.
Ben started the miraculous new CF modulator, Trikafta, almost 2 years ago, March 4th. Ben has been able to stay healthy and avoid any hospital admissions since he started Trikafta.
Your donations have helped get this drug on the market to give those fighting CF a chance at living a healthy, long life.
Cystic fibrosis is a devastating genetic disease that affects approximately 30,000 children and young adults in the United States. Research and care supported by the Cystic Fibrosis Foundation are making a huge difference in the lives of those with CF.
Making a donation is easy and secure. Just click the link below that says, 'Click here to visit my personal page' to make a donation that will support my team. Any amount you can donate is greatly appreciated. Your support will help fuel lifesaving CF programs.
Thank you for supporting Great Strides! Together, we can make a difference to the lives of those with CF.
Kati, Chris, and Ben
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
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