As most of you know 3 of our children were born with cystic fibrosis. CF is an inherited genetic disease that causes severe damage to the lungs, digestive system and other organs in the body. CF affects the cells that produce mucus, sweat and digestive enzymes. In people with CF, a defective gene causes the secretions to become sticky and thick which can make it difficult to breath, people with CF also experience chronic lung infections, digestive issues and overtime death.
When our first son was born we had no idea what cystic fibrosis was, so when the nurse came in to inform us that they were rushing Landon to the NICU we were in complete shock, we thought our perfect little boy was just handed a death sentence and it was soul crushing. We had no idea about all of the research that the cystic fibrosis foundation was doing to help find new medical treatments and drugs to extend the life of a person with CF.
When Landon was first born the average life expectancy was 25 years young but with all the research and donations from amazing people just like you, The life expectancy has gone up to mid-50’s. They are on the cusp of finding a cure for CF and I truly believe that we will see the day when CF stands for cure found.
We hope you will join our team and walk with us in honor of our own little Wrecking Crew.
Robert & Debbie
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