Introducing our new and growing team-Mighty Maclam Movers!
Our newest addition to the Maclam family joined us on June 27th, 2022 weighing in at 6lbs 15oz. True to his name, Noah, brings peace to our family. After 57 days in the NICU, Noah was welcomed home by his big brother and big sister!
Hearing your newborn has a life threatening disease at just 12 days old will break any parents hearts. Every emotion runs through your mind from wanting to know why and how could this happen. Both Raelynn and Noah went through panels of tests and at just over a week old were diagnosed with Cystic Fibrosis. But as any parent can understand, we knew we would do anything to make sure they had everything they needed. Grandma gave us some wise advice: that over time, this would become our new normal. Noah's journey with his Cystic Fibrosis has been different from his big sis. At 36 hours old, he underwent surgery for his blocked and twisted bowels.
From that day on we have given daily physical therapy treatments, broken thousands of digestive enzymes capsules open at each meal, have worried at each cough and runny nose, and battle with insurance coverage. Now have the added worry of Raelynn being in grade school full time and around kids that can make her sick. Now as a fierce and independent 8 1/2 year old, we watch proudly as Raelynn takes ownership of her health as she does treatments on her own. On the other hand, sadness creeps in, knowing that she has to fight this battle every single day......and we can't take it away from her.
Raelynn and Noah are not letting CF stop them anything!! She is lover of all animals and wants to be a vet when she grows up. Both kiddos are on the go and enjoy summer most of all. Noah is learning to crawl. Last year, Raelynn joined the cheer team and has a high kick like no other and cheers loud and proud. She is the kind of girl whose light does not have an off switch! Noah, is keeping up with the 'big kids' and excited to be able to join them in the pool this summer. They both have a magic that can make your day and a smiles that are contagious.
Join the fight and walk alongside not only Raelynn and Noah but all of the strong fighters and you will see their magic and empowerment for yourself!! There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe.
We advocate for them and hope you will support us in our efforts. Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, we are helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support us by making a donation to our Great Strides fundraising campaign today!
To all of the supporters and the never ending prayers for the health of Raelynn and Noah a "thank you" does not seem to even cover it but without the contributions and support, research and growth would not be able to happen.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.