Dear Family and Friends,
Introducing our new and growing team-Mighty Maclam Movers!
Our newest addition to the Maclam family joined us on June 27th, 2022 weighing in at 6lbs 15oz. True to his name, Noah, brings peace to our family. After 57 days in the NICU, Noah was welcomed home by his big brother and big sister!
Hearing your newborn has a life threatening disease at just 12 days old will break any new parents hearts. Every emotion runs through your mind from wanting to know why and how could this happen. Raelynn went through panels of tests and at just over a week old was diagnosed with Cystic Fibrosis. Her parents thought, how are we going to juggle all these doctor appointments, treatments, and medications? How will we know we are taking all precautions necessary and providing her with the correct medications? But as any parent can understand, we knew we would do anything to make sure she had everything she needed. Raelynn's Grandmother gave us some wise advice: that over time, this would become our new normal. Noah's journey with his Cystic Fibrosis has been different from his big sis. At 36 hours old, he underwent surgery for his blocked and twisted bowels.
From that day on her Dad and Mom have given daily physical therapy treatments, broken thousands of digestive enzymes capsules open at each meal, have worried at each cough and runny nose, and battle with insurance coverage. Now have the added worry of being in grade school full time and being around kids that can make her sick. Now as a fierce and independent 8 1/2 year old, we watch proudly as Raelynn takes ownership of her health as she does treatments on her own. On the other hand, sadness creeps in, knowing that she has to fight this battle every single day......and we can't take it away from her.
Raelynn and Noah are not letting CF stop them anything!! She is lover of all animals and wants to be a vet when she grows up. She is alway on the go and enjoys summer most of all. Spending the days playing in the pool and riding around on the quad. Last year she joined the cheer team. She has a high kick like I haven't seen before and cheers loud and proud. Raelynn has a magic that can make your day and a smile that is contagious. She is the kind of girl whose light does not have an off switch! Noah, keeping up with the 'big kids' and excited to be able to join them in the pool this summer!
Join the fight and walk alongside not only Raelynn and Noah but all of the strong fighters and you will see their magic and empowerment for yourself!! There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe.
I advocate for them and hope you will support me in my efforts. Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support me by making a donation to my Great Strides fundraising campaign today!
To all of the supporters and the never ending prayers for the health of Raelynn and Noah a "thank you" does not seem to even cover it but know that it comes from the bottom of everyone's heart that suffers from Cystic Fibrosis. Without the contributions and support, research and growth would not be able to happen.
Thank you from the bottom of our hearts,
Mighty Maclam Movers
Connect With Us
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
FOR YOUR SAFETY AND THE SAFETY OF OTHERS: