Alayna was diagnosed with Cystic Fibrosis during the 20th week of pregnancy. When we received the news we were devastated, lost, confused and unsure of what Alayna’s future would be. During the last 13 years of Alayna’s life, we have been through countless breathing treatments, antibiotic treatment, and hospital admissions. Every day is battle and every appointment is full of fear of the unknown. Alayna’s current medical treatment consists of over 10 pills that treat her lungs and stomach with 3 nebulized treatments daily and airway clearance. We don’t know what the future holds for Alayna and without a cure, we can only hope her life is long and beautiful. As Alayna’s mom all I hope and pray for is to see my daughter go to prom, graduate high school and even be there for her during her first broken heart. I hope I can be there for those things but with this awful disease I don’t know what the future holds for Alayna but I do know we won't stop fighting. All we have is our hope and prayers. Alayna lives her life to the absolute fullest. She's a football and competitive cheerleader. No matter how she is feeling she gives it all she has. We've had some major struggles these last few but we've fought and will continue to fight. In January 2018 Alayna received a feeding tube. Her weight has always been an issue and she was dropping too much due to her CF as well as some GI issues. We need you to help us fight this disease and one day find a cure for CF.
November 14th our lives changed completely. Alayna started Trikafta. This medication has given us hope for Alayna's future. Alayna is gaining weght her lung function has increased by 25 percent. Her constant productive cough is gone. She is able to continue being on the competive cheer team. She is able to run and keep up with the physical demand of the sport. Alayna is feeling great and each day gets better and better. All of this is becuase of you. Every dollar raised has helped us get where we are today. We are so grateful for each and everyone of you.
I hope we can count on you in our fight against Cystic Fibrosis!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.