Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that
clogs the lungs and leads to life-threatening lung infections; and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food. Cameron was diagnosed with Cystic Fibrosis in utero and knows no other way of life. Breathing treatments, chestphysiotherapy, digestive enzymes and hospital stays have been his "normal" since day one. Life with CF isn't easy, but Cameron takes it all in stride. Hospital stays and surgeries are inevitable.....Cameron has been hospitalized 8 times in his 13 short years of life.
As Cameron's parents, it is very hard for us to constantly push him everyday to do all his treatments, when what he really wants is to be doing anything else. We know however, that without these life saving treatments, his life would be very different. He wouldn't be the incredible athlete he is today. Along with his medications and therapy, excercise is very important. About 6 years ago Cameron tried out for a swim team and could barely swim a lap. Thanks to his coach who saw his potential she put him on the team. Since he began swimming his lung function has improved by more than 20%. He is consistently improving his times and getting stronger. Now he's a member of South Lyon's swim, cross counrty and Lacrosse teams. Several years ago this never could have happened. We would have been thankful if he would have survived to the age of 5 years old. Now the median age of survival is 39 years old. While that's wonderful, it's not long enough. It's 6 years younger than I am today. We want CF to stand for CURE FOUND!!
We are very humbled by any amount you are able to donate. Please know that .90 cents of every dollar is donated to research.
If you log into the CFF website you can read about all the exciting new treatment options in the pipeline thanks to the generous donations from all of you!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.