As most of you know, Weston was born with cystic fibrosis, a genetic disease that effects his body in many ways. The main struggles being his lung function and digestive health. Every day Weston spends 2-3 hours doing breathing treatments and takes multiple medications in order to make sure he gets the nutrition he needs and to keep his digestive system working. Even with these things he still has many worries that most kids his age don't have to think about. He has spent a good chunk of his life in appointments and hospital admissions and knows that is something that could happen at any time.
We are so excited to be able to have the great strides event this year so Weston can see how many people are supporting him and all of the other people fighting cf. The donations from events like this have funded research that led to many treatments we have now. Weston is so close to being able to start a medication called trikafta. This medicine has changed so many lives in huge ways and we are so thankful for every person who has shown up, donated, or supported the work being done towards a cure for Wes and every person fighting this aweful disease.
The fights not over until we have a cure! Show your support by signing up to attend Great Strides on May 15, 2022. There are options to attend in person or virtually, you can also contribute by making a donation to our team. Thank you in advance for all of your live and support and feel free to contact me with any questions!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.