My Great Strides Story
Lennon was born in May of 2021 and diagnosed with CF when she was 2 weeks old. Our sweet Lennon is so tough (like every CF Warrior) and we want to do our best to make sure she has a long healthy life without CF standing in her way of anything - the best way we know how to do this is to get involved and help work towards a cure!
When Lennon turned 2 she was lucky enough to get an airway clearance vest and start a life changing, newly FDA approved drug, Trikafta. None of this would have been possible without research and funding! While this is a huge step in the right direction, it is not a cure!
If you are able to participate in the event on May 5th, please join our team and help us get one step closer to a cure for Cystic Fibrosis.
With supporters like you by our side, the Cystic Fibrosis Foundation continues to lead the way in the fight against CF, fueling extraordinary medical and scientific progress. The life expectancy of someone born with CF has doubled in the last 30 years. Despite this progress, there is still no cure for our sweet Lennon and other CF warriors. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devastating disease.
We walk in Great Strides for them. See less
There is currently no cure for cystic fibrosis. By participating in Great Strides, I am helping to end this disease for thousands of people impacted by CF.
Cystic fibrosis affects the lungs, pancreas, and other organs. The symptoms can vary from person to person, and as people with CF live longer than ever before, their disease can become more complicated, leading to serious health issues.
The Cystic Fibrosis Foundation has made extraordinary progress — including fostering the development of more than a dozen CF treatments — but these treatments are not a cure and not everyone can benefit from them. We must keep going.
Your support makes a difference.
By donating to my fundraising goal, you will help advance our mission for a cure for all. Please consider joining us and helping make CF stand for Cure Found.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.