My Great Strides Story
My first Granddaughter, Penelope Joyce, was born on January 3rd, 2024. We found out Penelope would have CF when my daughter in law was 18 weeks along in her pregnancy via genetic testing. We were all devastated but pulled ourselves together, did a ton of research and talked to the doctors at the CF clinic at the University of Michigan. Robert and Brookelynn are working so hard to give Penelope all she needs to stay as healthy as possible and have a happy full life. They have a lot of support from family and friends and the CF clinic. Please consider giving even just a small donation to help find a cure for CF. There have been huge advances in the past 5 years with treatments and we would like to continue this momentum to get a cure for CF in Penelope’s lifetime.
Cystic fibrosis affects the lungs, pancreas, and other organs. The symptoms can vary from person to person, and as people with CF live longer than ever before, their disease can become more complicated, leading to serious health issues.
The Cystic Fibrosis Foundation has made extraordinary progress — including fostering the development of more than a dozen CF treatments — but these treatments are not a cure and not everyone can benefit from them. We must keep going.
Your support makes a difference.
By donating to my fundraising goal, you will help advance our mission for a cure for all. Please consider joining us and helping make CF stand for Cure Found.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.