Dear Family and Friends,
We are living in unprecedented times. We hope you are and continue to be safe and well. Although our annual CF walk has been canceled, our fundraising effforts and our passion for finding a cure remain.
In the last year, Kate's condition has been stable with no significant lung function or weight issues. Kate's current lung function is about 80%, which is average for someone with CF. Kate began attending high school this year. She is a typical teen, enjoys playing soccer and spending time with her friends. All normal stuff but when Kate was born in 2004, we were not 100% sure she would have this life.
In October 2019, Trikafta was approved by the FDA. Trikafta will treat the underlying cause of cystic fibrosis for 90% of patients and has proven through trials to significantly improve lung function and weight. This drug is specific to Kate's genetic mutations and we are grateful she started taking this medication on Thanksgiving Day. This could have not been possible without your generous support.
The CFF can only continue to make progress with financial support from people like you. Making a donation to our team is easy and secure! Just click on the "Donate to Me" button to make a 100% tax free donation to our fundraising page and your contribution will be credited to our team. No donation is too small .Lastly, if you wish to send us a check, please make it payable to the Cystic Fibrosis Foundation (CFF). We understand these are very difficult times and financially you may not be able to contribute this year. We ask you keep us top of mind for next year!!
As always, we are grateful for your continued love and support for Kate! Thank you for helping us add tomorrow's and making a difference!!
Love, Jim, Cathy and Kate