When Fisher was 6 days old we got the call that forever changed our lives. His newborn screening came back with 2 copies of F508del the mutated gene causing Cystic Fibrosis. At 9 days old he started taking digestive enzymes with every feeding. When he was 3 weeks we started respiratory therapy. In the Fall of 2019 he started Orkambi and he has done extremely well on this medication! These treatments and many more exciting ones coming down the pipeline are made possible because of funds raised by the CFF & Great Strides.
There currently is no cure for CF. The goals for these treatments are to ease symptoms, prevent and treat complications, and slow the progress of the disease. By joining our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. We will not rest until all those with cystic fibrosis have a cure. The time is now. Together, we can conquer this disease.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe. We walk for them. Will you join us? To become a member of our team, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
Join our team today and help add tomorrows!