My Great Strides Story
Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. We walk for them. We walk for our Rosie, who was diagnosed with CF when she was 2 weeks old. She spends hours every day taking medications and receiving treatments to keep her healthy. Rose is now six years old and loves being in Kindergarten with all of her friends. She is excited for soccer to start up again in the spring, and has recently been showing off her sales skills at Girl Scout Cookie booths. She's brave, creative, and fun, and she believes that there isn't anything that she can't do. We believe that too! And we are doing everything we can to ensure that she has a bright future.
Many of the medications Rose is taking right now to improve her life were funded by people like us. We are so thankful for the families and friends who came before us who helped make her current medications and treatments possible.
Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.
You can support me!
By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.
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Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
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