Hi! It is another new year to embark on fundraising for the most important cause of my life for myself, my brother, Nino, and our cousin, Jordan. I recently began reading "Breath from Salt" and the first sentence in the book struck numerous emotions out of me. "It isn't often that a journalist has the opportunity to chronicle a revolution-not a singular discovery or incremental advance, but a true sea change in science and medicine-all in real time" (2020, Trivedi). This statement captures the revolution of the Cystic Fibrosis Foundation and the massive changes in folks who live with this disease.
In this last year I have celebrated my daughter's first year of life. I have experienced motherhood both healthy and present. This is not due to my cystic fibrosis not causing me problems, rather it is the medication regime I am on that has allowed me this stability. Without the efforts put forth researching and funding these drugs, I would not be here in this capacity today. In the last year I have also participated in new studies that further the advancements that science has to offer living with this disease. The medical advancements have allowed me to never stop dreaming.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe. I walk for them and hope you will support me in my efforts. Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Real progress has been for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Please consider making a donation to my Great Strides fundraising campaign today!
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting groundbreaking research and medical progress. Your gift is 100-percent tax deductible.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.