Hello Friends and Family!
It is hard to believe that we heard the words "your daughter has Cystic Fibrosis" more than 15 years ago already. She was so little (15 pounds at 15 months old) and now she is full of life. This year she turned 16, started driving, had her first accident, started her fist job and is a varsity competitive cheerleader.
Our journey began with questioning all her "symptoms" thinking that she might have some sort of food allergy. A constant cough, an enormous appetite and more than a dozen diaper changes each day all were signs that something was not right. When Erin was born, there was not the newborn screen that is done on all babies born today. She missed this important test by only a few short months and is why she wasn't diagnosed until 15 months old.
Now, with the significant advances in the treatment of those with Cystic Fibrosis, Erin has access to precious treatments and medications that help her live a "normal" life. This year she was able to start taking a new medication and it has been life changing. It has been a year since she has been hospitalized, which is an amazing turn around from the previous two years.
As she is beginning to plan for her future (she has her heart set on being a pediatric nurse), we can't help but think how blessed we are. Only a few decades ago, children born with Cystic Fibrosis were not even expected to live to begin kindergarten. While next year she will embark on a new journey, with new challenges, we know her fight is not over yet. Cystic Fibrosis is a progressive disease, and without a cure, her health will continue to change. Today, children born with Cystic Fibrosis have an average life expectance of 50 years. We are so thankful for all the advancements being made which is why we fight and will continue to fight and will continue to until there is a cure for everyone with Cystic Fibrosis.
This year we are once again participating in the Great Strides Walk at Millennium Park on May 6, 2023. This is the Cystic Fibrosis Foundation's largest and most successful national fundraising event. We would love to have your support in helping Erin's Angels meet their fundraising goal this year. Your generous gift will be used efficiently and effectively, as nearly 90 cents of every dollar of revenue raised is available for investments in vital CF programs to support research, care and education.
Everyday precious lives are lost to this devastating disease, any amount you can donate is greatly appreciate and will add tomorrows to those suffering from Cystic Fibrosis.
Together we can make a difference in the lives of Erin and all those with CF. One day CF WILL stand for CURE FOUND!
Dave, Tammy, Andrew and Erin Ledkins
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Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
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