Our Great Strides Story
Please help us raise money to support the Cystic Fibrosis Foundation, so they can continue to fund life saving research into cystic fibrosis. This organization does so much for the CF community and has drastically impacted my person life along with that of my family.
When our son was diagnosed with CF we found ourselves quickly overwhelmed with the news and with the treatments that had to start immediately. These early months were incredibly difficult; as a parent you can't help but blame yourself for this disease and that quickly drew us into a deep depression. Everyday while performing his treatment it would hurt on an emotional level that I had never felt before. This continued day after day month after month until the CFF reached out to us and asked how are we doing and informed us of the resources available to us as parents. At first we refused any involvement as not to be a victim of this disease but over time came around and are thankful we did.
Since our initial involvement with the CFF we have found a community that we can relate to. We have found strength through those who are traveling the same journey as us. This has drastically improved our outlook on this disease and the roll it is going to play on our family. We are not a victim of this disease we are fighters.
Our son was named after a cowboy musician that I looked up to in my early adult years and little did we know at that time that he would be a "Cowboy Forever" because we decide what CF means to us now. He has since been on treatments and medicines that have been funded in big part from the CFF and knowing that these fund have likely saved his life and defiantly drastically improved his quality of life makes us want to support them in any way we can. We are not the first parents to go through this and we wont be the last but I am thankful everyday for the support given to us by this foundation.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.