Cecila's CF Story
Hi, my name is Cecila Bliss, I am 5 years old and I have cystic fibrosis (CF). Me, my family and friends participate in the Detroit Zoo Great Strides Walk so we can help CURE this disease for thousands of people, just like me, living with cystic fibrosis.
I love to go on carousels, sing and dance for fun, take naps of course and my favorite food is cottage cheese. One of my favorite memories is going with my family to Disney World for my 5th Birthday and Make-a-Wish Trip! We had the best time and they even had a pretty cool carousel there!
About Cystic Fibrosis
Cystic fibrosis affects the lungs, pancreas, and other organs. The symptoms can vary from person to person, and as people with CF live longer than ever before, sometimes our disease can become more complicated, leading to serious health issues.
I was diagnoised with cystic fibrosis at just 6 weeks old. My twin brother is a carrier and my older sister doesn't carry the CF gene. My mom and dad work really hard to keep me healthy. I do breathing treatments, take lots of enzymes with my food, I stay active and I get to take a special medicine called Trikafta, which has changed my life.
Trikafta is a modulator therapy which basically controls my cystic fibrosis symptoms. I still have to do hours of treatments to stay healthy but this special medicine will help keep me healthy until there is a cure for cystic fibrosis.
Team Bliss supports the Cystic Fibrosis Foundation because they have made extraordinary progress — including fostering the development of more than a dozen CF treatments — but these treatments are not a cure and not everyone can benefit from them. Team Bliss will fight until there is a cure for everyone living with cystic fibrosis.
Your support makes a difference.
By donating to my fundraising goal of raising $1,500, you will help advance our mission for a cure for all. Please consider joining us and helping make CF stand for Cure Found.
Thank you all in advance of your kindness, support and generosity.
Together, let's make CF stand for CURE FOUND!
<3 Cecila Bliss
WAYS YOU CAN SUPPORT OUR TEAM:
1) Donate to our team and share your support on social media!
2) Register and join our team! Then, set your own fundraising goal and share our story with your community. To join, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
3) Facebook Fundraising AFTER you join our team. When you register, go to your PARTICIPANT CENTER and click the blue button labeled: FUNDRAISE ON FACEBOOK. Be sure to register for the Detroit Zoo Walk FIRST. Anything you raise through Facebook Fundraising AFTER you register for Great Strides, will automatically count on our team total.
The Detroit Zoo Great Strides is on Sunday, May 5, 2024. Check in starts at 7:30 AM and the walk kicks off at 8:30 AM. In order to join us the day of the walk, please be sure to register for our team.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.