As most of you know I have cystic fibrosis. I am so incredibly lucky that I continue to be healthy, but many with CF are not.
CF is not an easy disease, it has no remission. I have faced many challenges but have been very fortunate. The reason I lived long enough to have a transplant is the advancement in medicines made by the CF Foundation. While my transplant is what has saved my life, it isn't a cure!
May is CF awareness month. My family and I walking, running, typing to help support and find a cure for CF
The CF Foundation has made so much progress with research in the last couple of years. They funded the research for Trikafta. This has been regarded as a miracle drug helping over 90% of the CF population increase their lung function and reduce hospitalizations. Unfortunately, the other 10% of patients, including myself, are still waiting for their miracle therapy. There are some exciting things in trial for my mutations.
There are approximately 40,000 Americans living with cystic fibrosis. 20 years go this number was only 30,000. That shows these donations work! These fund raising efforts are helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support me by making a donation to my Great Strides fundraising campaign today!
Thank you in advance for your support!
Ryan
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.