Christiâ'TMs Crew 2022
If you're reading this, you probably know my story...I was diagnosed with Cystic Fibrosis at the age of 21 after my 30 year old sister and 31 year old brother were diagnosed. I didn't know there was anything wrong with me at the time, but because CF is genetic, and I had most of the symptoms, I was given a sweat test and tested positive for CF.
The evolution of the treatments for CF has been extraordinary over these past 32 years. I have benefitted greatly from all the research done over the years because of funding from the Cystic Fibrosis Foundation. The new treatments they have uncovered are the reason I am still doing so well. In fact, the modulator, Trikafta, that I currently take has helped so much that I hardly feel like there's anything wrong with me anymore. I'm super fortunate to have access to that!
In addition, the CF Foundation just announced a major investment in gene therapy. This could be a cure for CF, something I never thought I’d see.
If you are able to donate, I would appreciate it. There are over 30,000 others with CF in the United States who would appreciate it as well.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.