HI
I’m Jen, and my son Weston was diagnosed with Cystic Fibrosis at just a few weeks old. Wes’ first few years of life were extremely difficult with long, frequent hospital stays, and just so much happening so fast. My 5 lb newborn baby was eating applesauce off of a spoon so he could take medicine that only comes in a capsule and I was having to use this silly looking rubber thing to pat and shake up his lungs and so much more. And we had weekly appts to make sure our efforts to keep him healthy were working. I was constantly running through a checklist in my head to ensure all of these needs were being met.
Many times we went to a regular office visit would become a 2-3 week hospital stay with no notice. I was advised to keep a hospital bag in the trunk because it could happen unexpectedly. I wanted to take it all away and as a mom I felt powerless. So much of the time I wanted to spend just watching my baby laugh and worry about when he was gonna reach his next milestones was spent focusing on watching the way he’s breathing and tracking BMs.
I couldn’t take the CF away, but I realized I wasn’t powerless. Since Weston was born we put together a team to show up and walk, and worked to raise awareness and funds towards the CF Foundation praying for new treatments and ultimately a cure!
Because of money raised by the CF foundation through events like Great Strides, Wes started a new medication two years ago called Trikafta that has truly changed our lives and changed the outlook of life for Weston.
He has been able to stay out of the hospital, he’s more energetic, is making lots of friends at school, and is just getting to be a kid! We love doing art projects and playing the Nintendo switch together. He’s so funny, I love hearing his stories. All of these things are possible and he’s able to grow into the special little person he is because of support and donations to the CF foundation and their dedication to improving the lives of Weston and so many others.
Wes loves this event and everyone who showed up made him feel special.
Join us on May 11 to show support and donate towards the search for a cure!
We sooo appreciate all of your love and support!
-Jen Brown
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.