Why I'm passionate about the Cystic Fibrosis Foundation!
The short answer is my grandson & the 5 other warrior friends I know that are living with CF.
These friends of mine with CF spend 2 to 3 hours each day managing their CF with breathing treatments, antibiotics orally and nebulized, bronchodilators, enzymes prior to every meal just so their body can absorb nutrition, planning nutritious meals & Fitness
The average person with CF spends 2 to 3 hours each day going through their regimen of treatments when you include all treatments plus time for nutritious meals and fitness. There is currently no cure for cystic fibrosis. However the CF foundation has made great strides with the newest medication for CF, it is called TRIKAFTA!
Trikafta has been life-changing for those I know with CF!
There is currently no cure for cystic fibrosis. By participating in Great Strides, I am helping to end this disease for thousands of people impacted by CF.
Cystic fibrosis affects the lungs, pancreas, and other organs. The symptoms can vary from person to person, and as people with CF live longer than ever before, their disease can become more complicated, leading to serious health issues.
The Cystic Fibrosis Foundation has made extraordinary progress — including fostering the development of more than a dozen CF treatments — but these treatments are not a cure and not everyone can benefit from them. We must keep going.
Your support makes a difference.
By donating to my fundraising goal, you will help advance our mission for a cure for all. Please consider joining us and helping make CF stand for Cure Found.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.