Jen Brown

HI FRIENDS

It’s time to get ready for the annual Cystic Fibrosis fundraising event, Great Strides, 2024!  

If I had one wish I would cure CF

I’ll never forget the emotional roller coaster of being pregnant and being told my baby would likely have CF.  I was referred to specialists who disagreed. And the fear throughout that first hospital stay as we we spent weeks searching for answers.  But nothing compared to the weight and uncertainty of the first days and weeks after Weston was diagnosed. I was hearing scary things about what this would mean for him and I could handle the hours of treatments and appts and constant care, but it broke my heart to think about my baby having to fight this terrible disease that would ultimately take his life. 

I was assured in those early days that they are working hard on new treatments and there’s a chance we could get life changing medications in his life time and I didn’t know what was even possible but I had to believe there would be something. 

For the first 3 or 4 years of his life Wes multiple weeks out of every few months admitted to the hospital for CF.  Those days were hard. Just me and Wessie, he was buddies with all the nurses and respiratory therapists

But two years ago Wes started a new medication called Trikafta, and it has truly changed his life in unimaginable ways! He has not been in the hospital, he has been able to maintain a healthy weight, he has more energy, and he’s able to for the most part just be a kid! He has lots of friends and is loving 2nd grade. This is because of money raised through the CF Foundation through events like Great Strides.

While this is HUGE there is still work to be done. It’s not over until there is a cure for CF. 

Help support Wes and so many others living with Cystic Fibrosis by joining us May 11 at Olander Park in Sylvania or donating towards a cure!

Thank you for your support, I am truly so grateful for all of you