Our team is driven by a dream that one day, every person with cystic fibrosis will have the chance to live a long, healthy life. You can help us reach that goal!
Our Great Strides Story
Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. We walk to help add tomorrows to their lives! We walk in memory of my sister, Jessica, who passed away from cf in 2015, and others we know who lost their fight against cf. We also walk in honor of those living with cf. The funds raised during Great Strides (and other CFF fundraisers) make sure research can continue which in turn results in better medications and treatments for cf individuals. Significant advancements have made over the years, especially the past few years with "modulator drugs"! That's a whole topic in itself. Suffice it to say, cf patients are living longer and fuller lives thanks to people like YOU!
Join team Volumes of Hope to help make a difference in the lives of all people living with CF. To become a member, click the "Join this team" button. From there, you can donate and start fundraising.
As a member of our team, you are joining a growing community of people committed to finding a cure for cystic fibrosis. Together, we can make CF stand for Cure Found.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.