My Great Strides Story
The day our lives changed forever was when my daughter was 3 weeks old and we received her diagnosis of Cystic Fibrosis. Our world turned upside down with fear and anxiety trying to navigate a world that no matter where we turned could potentially hurt our daughter.
Emerson has had 2 lung infections since she has been born and she has a daily regimen of 2 inhaler treatments, 1 nebulizer treatment, and 2 twenty minute physical therapy treatments every single day to maintain and prevent lung infections.
Emerson also takes enzymes every time she eats to help her absorb fats and gain weight appropriately. Emerson has been on a modulator for just over 6 months now called Trikafta but that does not change her preventative care and her need to enzymes everyday.
Please join Christian, Emerson, and I in our fight for Emerson (and all of the CF community) in finding a CURE for CF! Emerson is a warrior but she should never have to fight alone.
Cystic fibrosis affects the lungs, pancreas, and other organs. The symptoms can vary from person to person, and as people with CF live longer than ever before, their disease can become more complicated, leading to serious health issues.
The Cystic Fibrosis Foundation has made extraordinary progress — including fostering the development of more than a dozen CF treatments — but these treatments are not a cure and not everyone can benefit from them. We must keep going.
Your support makes a difference.
By donating to my fundraising goal, you will help advance our mission for a cure for all. Please consider joining us and helping make CF stand for Cure Found.
Connect With Us
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.