Join my team and help us get one step closer to a cure for cystic fibrosis – a rare, genetic, life-shortening disease that makes it difficult to breathe.
When Celtics legend Bob Cousy retired in 1963, he was the honorary chairman of the Massachusetts Chapter of the Cystic Fibrosis Foundation. My sister, Martha, then 13, was chosen to represent the CF Foundation, presenting gifts of appreciation to the Cousy family. The old Boston Garden rocked when Cooz bent down and Martha reached up on her skinny legs for this hug. She was gone 3 years later.
In 1955, Martha was 5 when she was diagnosed with a rare new disease, cystic fibrosis. She underwent treatment with Dr. Harry Schwachman at Children's Hospital. My parents were quick to get involved, helping to form and serve in the Massachusetts Chapter of the CF Foundation. Today, the 300,000 people living in the US with CF are enjoying the benefits of the work started back then. The CF Foundation has funded reasearch that led to the identification of the gene that causes CF. Most recently, targeted research led to the development of the Trikafta therepy, that can successfully treat 90% of those with CF.
I started fundraising for the CF Foundation at a very young age. Back then, it was knocking on doors, asking for donations. Today, it's Great Strides, normally a fun day of gathering and walking, that is sadly virtual again this year.
Will you join us?
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found!
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.