At just a week old, Declan was diagnosed with Cystic Fibrosis. For those that don't know what CF is; it's a genetic disease that effects the lungs, pancreas, liver and intestines. Those who have Cystic Fibrosis tend to build up more mucus in their lungs, which then traps bacteria and clogs the airways. With that being said, it can cause respiratory infections, inflammations and a whole number of complications. A "slight" cold (runny nose, cough, etc…) to someone without CF, can lead to hospitalizations and a longer sickness to those who live with CF.
30,000 people in the United States live with CF on a daily basis. Each year 1,000 newborns are born with this disease. Thankfully Declan is a healthy little guy right now, all thanks to his medications and treatments that are needed on a daily basis. In the past decade alone, there has been more research and medications available to us that help fight this disease. The only thing missing is a cure. So please help people like me find a cure for Cystic Fibrosis!
There are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease.
I walk for them. Will you join me and support my Great Strides fundraising goal?
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short.
By walking with me in Great Strides, you can help accelerate the Foundation’s pursuit of new therapies and provide vital support to meet the needs of the CF community.
Please support me and my family in the fight against this disease!
Your participation will help us get one step closer to ending this terrible disease. Let’s make CF stand for Cure Found.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.