Spring is in the air! and the time of year when we ask for your support of Justin and Ross in our quest to cure CF.
This past October, we received amazing news. The drug Trikafta was approved by the Food & Drug Administration (FDA) and it is the first drug that treats the underlying problem in Cystic Fibrosis (the sodium-chloride transport in the cells of the body).
Trikafta was the drug Justin has been taking for the past 1.5 years in the clinical research trial. It has helped him to gain 30 lbs and has improved his lung function from the 40s to the low 70s. It has stayed at this improved level.
Ross was eligible to start taking Trikafta after Thanksgiving and at the time of his next appointment at Christmas, his lung function improved dramatically, and he too, like Justin, stopped coughing. It seemed like a miracle and we've been so excited as a family and have celebrated this major milestone.
This is not a cure for CF and there are many mutations which Trikafta does not treat, so our journey continues, until we can find the Cure.
Please join us again this year by helping us to raise money for ongoing CF research!
Thank you for your generosity and kindness !! UNTIL WE ARE DONE and until CF stands for CURE FOUND!
With gratitude, the Myerson Family (Joel, Kim, Justin, Michaela & Ross)
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.