At just a week old, Declan was diagnosed with Cystic Fibrosis. For those that don't know what CF is; it's a genetic disease that effects the lungs, pancreas, liver and intestines. Those who have Cystic Fibrosis tend to build up more mucus in their lungs, which then traps bacteria and clogs the airways. With that being said, it can cause respiratory infections, inflammations and a whole number of complications. A "slight" cold (runny nose, cough, etc…) to someone without CF, can lead to hospitalizations and a longer sickness to those who live with CF.
30,000 people in the United States live with CF on a daily basis. Each year 1,000 newborns are born with this disease. Thankfully Declan is a healthy little guy right now, all thanks to his medications and treatments that are needed on a daily basis. In the past decade alone, there has been more research and medications available to us that help fight this disease. The only thing missing is a cure. So please help people like me find a cure for Cystic Fibrosis!
There are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease.
I walk for them. Will you join me and support my Great Strides fundraising goal?
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short.
By walking with me in Great Strides, you can help accelerate the Foundation’s pursuit of new therapies and provide vital support to meet the needs of the CF community.
Please support me and my family in the fight against this disease!
Your participation will help us get one step closer to ending this terrible disease. Let’s make CF stand for Cure Found.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.