Our team is driven by a dream that one day, every person with cystic fibrosis will have the chance to live a long, healthy life. You can help us reach that goal!
At week 10 of my pregnancy with, Teddy I had a procedure done that confirmed he would have CF. Of course that was a hard thing to hear and being undereducated about it at the time, it was very scary & full of if’s, what’s, and when’s. Also having a nearly two year old who was healthy was challenging too, if & how would her life change to adjust to this?
Teddy was healthy until roughly his his first birthday when he cultured a bacteria that is potentially & more specifically harmful to one with CF. He started nebulizer treatments to the three times a day for 90 days with hopes of eradicating the bacteria by the end of the treatments. If you’ve never had to do 2 to 3 nebulizer treatments daily with a one year old, just let me tell you how challenging that can be!
When cultured after the 90 days, he still showed the pseudomonas. We then started a second round of the 90 days of nebulizer treatment. With that being said Teddy's days consisted of two morning treatments & one night treatment. During this time I was still working and a full time nursing student, if I didn’t have my family, & mostly my grandmother** (who later found out she too has CF) EVERYDAY to do 90% of these treatments with him, we wouldn’t be we’re we are now so that women deserves all the credit for taking on all this stress but she never complained about any of it!
Luckily, after a total of 180 days he had fully eradicated the bacteria. Teddy's current treatment regimen consists TRIKAFTA twice daily, his chest PT which we have a vest for and a nebulizer. Teddy is a strong adorable sweet boy and is doing so good! Please join us by donating and or walking to support cystic fibrosis. Let's kick CF's butt !!!
Getting a very late start this year but better late than never!
This is the 5th year I am fundraising and walking for the Cystic Fibrosis Foundation & the most impactful year as well as both my dad and I found out we too HAVE cystic fibrosis!
That is now 4 generations of my family who have CF & 5 years ago, if it weren’t for Teddy none of us would have found out about our own diagnoses.
Please join team Teddy and or donate if possible! We will be walking in Hingham again this year on May 19th. We’d love to see you there and watch team Teddy grow as it does each year!
Thanks so much for all your continued support!
#TeamTeddy … & family
#FCF
#cysticfibrosisawareness
people living with CF. To become a member, click the "Join this team" button. From there, you can donate and start fundraising.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.