Our brother, nephew, cousin, son, partner, and friend Brian Long, has been battling cystic fibrosis (CF) since birth. CF is a terminal lung disease that affects thousands of people worldwide, and unfortunately, Brian was diagnosed with this condition early on. Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs.
Fourteen and a half years ago, Brian received a double lung transplant, which gave him a second chance at life. This gave him another opportunity to continue to live life to the fullest, travelling the world on many adventures, and fulfilling some of his wildest dreams.
Brian's strength has been an inspiration to many. He has shown us all that even in the darkest of times, there is always room for laughter, love, dancing and belting out some Diva tunes!
Despite the challenges that CF presented, Brian has never let it define him. He has always been determined to live life to the fullest and has never let the disease hold him back. He has been an inspiration to us all to embrace every moment and BLongCFStrong!
Show your support!
That is why I am writing to you today, to encourage you to join us in supporting the Worcester Great Strides Walk on May 13th, by donating to the BLongCFStrong team in honor of Brian Long and all those living with CF everyday.
Your support will help us continue to raise awareness for cystic fibrosis and fund research that will help find a cure for this disease. Every dollar counts, and your contribution will make a difference in the lives of those living with CF.
So please, join us in our fight against cystic fibrosis by making a donation today. Let us honor Brian's strength by supporting the BLongCFStrong team in the Worcester Great Strides Walk.
Thank you for your support, and let's continue to live life to the fullest, and BLongCFStrong!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.