Our team is driven by a dream that one day, every person with cystic fibrosis will have the chance to live a long, healthy life. You can help us reach that goal!
Our Great Strides Story
Ianthia-Louise was born April 28th 2022. In Worcester, Ma. She was born with meconium illeous. She had surgery at just 20 hours old. She spent her first month of life in the NICU at Umass Memorial Medical Center. She has had several admissions over this past year. Despite her rough start Ianthia is a superstar and continues to thrive. She loves playing with her older twin brother and sister. She enjoys blueberry muffins, the movie Sing2, and all things music. She loves bath time and loves to spend her days snacking and dancing. She loves to crawl around and is always smiling and laughing. She loves to be outside and playing in the grass. Ianthia brings such a light to all lives who cross her path. We are truly blessed to have her. Our hope is to raise money and awareness so other babies like Ianthia can live a long enjoyable worry free life. I’d love to see a cure for my daughter in my lifetime.
Please Join our team to help make a difference in the lives of all people living with CF. To become a member, click the "Join this team" button. From there, you can donate and start fundraising.
As a member of our team, you are joining a growing community of people committed to finding a cure for cystic fibrosis. Together, we can make CF stand for Cure Found.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.