Dear Friends & Family,
It is that time of year again, where Bob’s Buddies is preparing for its 16th Great Strides Walk in support of the Cystic Fibrosis Foundation. We are excited to be returning to an in-person walk after a 2-year hiatus because of Covid.
Bob’s Buddies has raised over $155,0000 to support Cystic Fibrosis Research thanks to your generous support.
Bob was able to return to school for his sophomore year of high school, now that he is vaccinated. Thank goodness, because another year fully remote would have been difficult on all of us. Although Bob continues to be extremely cautious because of Covid, it is nice to have some normalcy again.
Since starting Trifakta, Bob has stayed out of the hospital and has only required an occasional course of antibiotics. He no longer requires daily chest PT and nebulizer treatments. He now only needs those treatments when he gets sick. That is 2 hours of quality time he has gained back in his life each day.
Bob continues to take Trikafta, but has actually been reduced to taking it every other day, because of its side effects. He was experiencing elevated liver enzymes and significant weight gain. His doctor hopes the adjusted dosing will continue to be therapeutic but reduce the side effects.
We continue to support the Cystic Fibrosis Foundation to fund research to find the next generation of treatments, that will hopefully have less significant side effects.
To make a tax deductible donation to Bob’s Buddies, please visit http://fightcf.cff.org/goto/bob.
Love,
Jason, Andrea, Josh & Bob
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Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
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