“Marc’s Trotters” - This Team Walk will be on Devens not Worcester
Our grandson, Marc, was 10 days old when he was diagnosed with CF. We were unaware of the gravity of this diseases. We had heard of it but never knew anyone with it. After he was diagnosed we got involved to learn about this disease. The more we learned the more we realized how important the research is. We got involved in fundraising because of the cost of research.
We made our first walk in May 2015 in Chelmsford, when Marc was 2 years old. We are known as “Marc’s Trotters”.
This is our 7th year! One important part of the walk is that it gives us a chance to educate people - especially about the fact that CF is something a person cannot outgrow.
Marc turned 9 on March 7th, he has been relatively health and with the help of his team of specialist he has never been hospitalized. Marc still must spend 2-3 hours each day on his daily treatments. He must be careful in public to keep safe from bacteria and viruses that could make him sick. He also takes pancreatic enzymes with each meal to help him to digest his food, but he still often has stomach pains.
We are thankful for all the wonderful new medications that are available, but we need a cure for Marc and others living with CF (particularly those who cannot benefit from exisiting medications), and we will walk every year until they find one!!
We walk for all of those who have CF. Will you help us?
Walk with Marc’s Trotters: Click on the “Join This Team” Date: Sunday, May 15th, 2022 (rain or shine) Time: 10:00 am – 12:00 pm Location: 29 Antietam Street Playground Devens, MA
Making a Donation: Click on the “Donate to a Team Member” and select "Edith Stephen," any amount is appreciated.
Thank all you for your continued support, without you we could not do it. With your help we are getting closer and closer to a cure. We want to make CF not just stand for Cystic Fibrosis, but CF will stand for CURE FOUND!!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.