Meet Josh, he’s 21 years old ~ Fighting the fight living with Cystic Fibrosis~
Josh loves sports, especially pro/ college Basketball & Football. He is an avid viewer & listener of sports radio.
You can find Josh playing 1 of his several guitars. He is self taught and enjoys listening and playing music. His loves are his dogs Xena, Blue & Gemma..rough housing is their game and they love to keep him on his toes!
What you may not know about Josh is that he has Cystic Fibrosis. When Josh was born and diagnosed with CF the doctors told me he wouldn't live past the age of 13. Well guess what, Josh is about to turn 22 on May 18 !! What a huge milestone and surely something to celebrate. It's with the help of so many people who help raise money for CF that aids scientists, doctors, nurses and researchers find advancing medicines to prolong the effects cf has on the body and hopefully one day soon a CURE! This Year has started off with great strides for Josh as he's started a new medication called Trikafta ! This revolutionary drug is know to help lessen the effects that CF has on the body~We will keep everyone posted via our facebook page.
Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States. A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that:
clogs the lungs and leads to life-threatening lung infections; and
obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
Frequent lung infections.
Here is how you can make a difference too- Join our team “Team Josh “! Set a personal fundraising goal and ask your co-workers, friends and family to donate for Great Strides walk to help cure Cystic Fibrosis. There is no actual walk this year~ we are doing a Virtual walk for CF~
You can “Like” us online on face book/joshscure to keep up-to-date with our fundraising efforts & share our page to spread awareness.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.