Help us support Mabel and raise some money to help find a cure! She is a spitfire, a love bug, a whirling dervish, and a force to be reckoned with! With Mabel's daily medications she is THRIVING! She loves playing sports(soccer, basketball, and softball!) and is right on track with growth. Her health has never been better, all thanks to the advances in medicine and the continuous fight to help find a cure!
Every day with her is a gift, so please, any donations are GREATLY appreciated. Over the years Mabel's March has rasied a remarkable $47,140!!!! Thank you to EVERYONE for your support in the past and going forward. Looking forward to seeing everyone!
***If you'd like to purchase a Mabel's March shirt, copy and paste the link below! All proceeds go to her fundraiser
The current life epectency of someone born in 2013, like Mabel, is 44 years old.....Far too young..With your donations and help we can try and find a cure and extend this number. Research is funded by your donations, the CFF does not receive federal funding!
Cystic fibrosis is a genetic disease, meaning it is caused by a person's genes. It affects the glands that produce mucus and sweat, causing mucus to become thick and sticky.
As the mucus builds up, it can block airways in the lungs. This makes it increasingly difficult to breathe.
Mucus buildup also makes it easier for bacteria to grow. This can cause frequent infections in the lungs.
Mucus buildup can prevent necessary digestive enzymes from reaching your intestines. The body needs these enzymes to digest the nutrients in the food that you eat, including fats and carbohydrates.
People with cystic fibrosis also lose large amounts of salt when they sweat. This can cause an unhealthy imbalance of minerals in your body
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.